Rare Disease Virtual Symposium

Rare disease isn’t rare. In fact, 1 in 10 people lives with a rare disease. There is no cure for the majority of rare diseases and many go undiagnosed. That’s why building awareness of rare diseases is so important. Register now.

Through this symposium, the Missouri Cures Education Foundation hopes to raise awareness and provide information and resources to those living with or supporting a loved one with a rare disease.

Join us for this free virtual symposium and learn from our outstanding speakers and panelists.

SPEAKERS AND PANELISTS

Opening Speaker

F. Sessions Cole, MD

Principal Investigator, Undiagnosed Disease Network, 

Washington University School of Medicine

Keynote Speaker

Nicole Boice

Founder, Global Genes

Co-Founder, RARE-X

Panelist

Dionne Stalling

Founder/CEO, 

Rare and Black

Panelist

Kelly Ranallo

Founder, RareKC 

Founder/ President, Turner Syndrome Global Alliance

Panelist

Fran Sverdrup

Associate Professor Biochemistry and Molecular Biology,

Saint Louis University School of Medicine

Panelist

Stephanie Snow Gebel

Chairman/CEO

The Snow Foundation 

Thank you to our generous sponsors